Policies and Procedures

Freedom of Information and Subject Access Requests

Join Dementia Research aims to work in a transparent manner, making information about its work and progress publicly available, and putting volunteers in control of their own personal data as much as possible. We abide by the requirements of the General Data Protection Regulation (GDPR), the Data Protection Act 2018, the Environmental Information Regulations and the Freedom of Information Act. In accordance with the Data Protection Act (2018), any individual whose data is being processed by Join Dementia Research can ask to see this information.

How to make Freedom of Information or Subject Access Requests (PDF).

published 20/08/2018

Complaints Procedure 

We want to make sure that everyone has the best possible experience of using Join Dementia Research. We take complaints about our work, staff and levels of service very seriously.

Information on how to make a complaint (PDF).

published 21/08/2018

Password Policy

Your password must be at least 8 characters long and should contain at least one uppercase letter (A-Z), at least one lowercase letter (a-z), and one numeric character (0-9).

Our password policy (PDF), explains best practice standards for chosing your password  including how complex passwords should be and how often they should be changed.


published 15/08/2018

Managing your information

We recognise that your needs and preferences can change over time, particularly the level of commnications you receive and whether you want to participate in research studies. We want you to be able to manage your Join Dementia Research membership to match your preference at any point in time. This document explains how to do this as well as how we look after your data.

Managing your information (PDF). 

published 12/11/2018