Managing your information Terms and Conditions of use

We expect you to use the Join Dementia Research system in a safe and secure manner.  Our Terms and Conditions give you clear advice and guidance about your responsibilities for keeping data safe when using the system.  This is for all users, including registered volunteers, representatives, researchers, NHS staff, members of a third party (such as our partner charities) or any other user. In using Join Dementia Research, you are confirming that you will abide by these Terms and Conditions.

Terms and conditions of use for Join Dementia Research.

 published 03/06/2024

Managing your information

We recognise that your needs and preferences can change over time, particularly the level of commnications you receive and whether you want to participate in research studies. We want you to be able to manage your Join Dementia Research membership to match your preference at any point in time. This document explains how to do this as well as how we look after your data.

Managing your information. 

 published 07/12/2022

Complaints Procedure 

We want to make sure that everyone has the best possible experience of using Join Dementia Research. We take complaints about our work, staff and levels of service very seriously.

Information on how to make a complaint.

 published 07/12/2022

Freedom of Information and Subject Access Requests

Join Dementia Research aims to work in a transparent manner, making information about its work and progress publicly available, and putting volunteers in control of their own personal data as much as possible. We abide by the requirements of the General Data Protection Regulation (GDPR), the Data Protection Act 2018, the Environmental Information Regulations and the Freedom of Information Act. In accordance with the Data Protection Act (2018), any individual whose data is being processed by Join Dementia Research can ask to see this information.

How to make Freedom of Information or Subject Access Requests.

 published 03/06/2024

Password Policy

Your password must be at least 8 characters long and should contain at least one uppercase letter (A-Z), at least one lowercase letter (a-z), and one numeric character (0-9).

Our password policy, explains best practice standards for chosing your password  including how complex passwords should be and how often they should be changed.


 published 07/12/2022

Cookie Policy

We use cookies to make our website work and to improve user experience. Any information collected is stored as anonymous information. Some cookies are essential and we do not need to ask permission to use them. Non-essential cookies are set by third party websites and we cannot turn them off on the Join Dementia website, however, you can reject these additional cookies in your browser settings.

Information about cookies


 published 23/03/2023